Disability activist Lucy Edwards shares pregnancy ‘question mark’ as she seeks IVF to remove blind gene

Health & FitnessFamily & Parenting
30 Apr 2025 • 6:10 PM MYT
The Independent
The Independent

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Blind activist and broadcaster Lucy Edwards has revealed why she will have IVF to remove the gene which led to her losing her eyesight as a teenager, citing one "question mark" which would surround the pregnancy if she conceived naturally.

Edwards has the rare genetic condition known as incontinentiapigmenti - the same condition which saw her grandmother miscarry nine baby boys.

She told Good Morning Britain on Wednesday: "I don't want to put my body through what my grandmother went through.

"If I don't have to, I don't want to go through that. With today's technology, it's amazing."

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