Jesy Nelson has blasted the “unfair” rollout of spinal muscular atrophy (SMA) tests, likening it to a “postcode lottery”.
In January, the singer shared the devastating news that her daughters, Ocean Jade and Story Monroe Nelson-Foster, had been diagnosed with the rare genetic condition that may prevent them from ever walking.
A petition she launched for the inclusion of the test has gained over 150,000 signatures and will be debated in parliament on Monday (22 June), which she will attend.
However, in a recent Instagram post ahead of the debate, Nelson criticised the rollout, which would only cover 72% of England.
“That means some babies won’t be screened simply because of where they live. A postcode lottery like that just isn’t fair.”
