Jesy Nelson fights to change newborn screening laws in emotional new documentary

Health & FitnessMovie
3 Jul 2026 • 2:44 PM MYT
The Independent
The Independent

The world’s most free-thinking newspaper

Jesy Nelson fights to change newborn screening laws in emotional new documentary

  • Jesy Nelson, 35, is set to release an Amazon Prime documentary titled 'Jesy Nelson: Life Changing', which follows her campaign to reform UK newborn screening laws.
  • The documentary is driven by her personal experience after her twin daughters, Ocean Jade and Story Monroe, were diagnosed with the rare condition Spinal Muscular Atrophy (SMA).
  • Nelson shared an emotional trailer, revealing she feels she will be 'heartbroken for the rest of my life' and stressing the daily challenges her daughters endure.
  • She is advocating for mandatory SMA testing to be included in the newborn heel prick test, asserting that early diagnosis and treatment are vital to mitigate the condition's most severe impacts.
  • The series, which explores Nelson's journey as a single mother adapting to her daughters' conditions, is scheduled for release on July 17.

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